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And....This Made All of the Difference

Heaven's Special Child

A meeting was held quite far from earth

“It’s time again for another birth”

said the angels of the Lord above.

This special child will need much love,

His progress may seem very slow;

accomplishments he may not show.

And he’ll require much extra care

From all the folks he meets down there.

He may not laugh or run or play;

His thoughts may seem quite far away.

In many ways he won’t adapt,

And he’ll be known as ‘handicapped’.

So let’s be careful where he’s sent,

We want his life to be content.

Please, Lord, find the parents who

will do this special job for you.

They will not realize right away

The leading role they’re asked to play.

But with the child from above,

Comes stronger faith and richer love.

And soon they’ll know the privilege given

in caring for this child from heaven-

Their precious child so meek and mild

is “heaven’s very special child”.

 
I found this poem in a christian book store shortly after we brought Katie home from the hospital. Now what you don't know about me is that I'm 6'-5" tall, 210lbs.excellent conditioning and tough as nails. When I approached the cashier the store manager asked if I was o.k. because I had tears just streaming down my cheeks. Before having Katie, I vowed never to cry from the time my mother died when I was seven years old; I didn't even cry at her funeral and I never did show any emotion but anger until I made a very solom promise that if Katie could live and I could have Katie in any condition that she would be in; I would care for her as the best parent that I could be for the rest of my life.
 
People notice the bond that I have with my wife and children and especially Katie.
I know what Katie wants, before she asks. She was an appedage to me for years as she grew. She's 15 and I still carry her. I advocate for her continuously, I tuck her into bed every night. I read to her as often as possible. I play with her everyday. Katie is a very happy young lady that continues to exceed everyone's wildest expectations.
 
I was labeled "the unrealistic parent", the label then went away and finally Katie's doctors said, "We don't know why Katie is doing so well. Just keep doing what you are doing."
 
Katie is one of heaven's special children; and I believe that Katie came to me to teach me. She has identified my purpose in life, taught me what true happiness is about, (boy was I off base for years) and set goals out before me that I must fulfill.
 
Listen to what your child from heaven is telling you; never, ever give up; and give them another hug from me.

Harry (BS.Ed) and Betsy Lieb (BSN) Special Needs Advocates, founders of Accessible Home Builders Corp. are Katie’s parents. We share our lives with our daughter who lives with complex mobility and communication challenges and three other supportive children. We have long been involved in advocacy for special needs individuals, innovative service development, community-building and the issues of accessible housing. We support individuals, families, government, educators and community agencies, parent associations and self-advocacy groups through speaking engagements and the development of specialized presentations and training.